Home
Choosing Your Health Plan
Your Costs
Choosing Your Healthcare Provider
Dental Coverage
Understanding Your Bill
Your Rights
Surprise Billing
Costs
Locate Providers
Insurance Appeals and Assistance
Quality of Care, Literacy and Reform
Wellness
Disability and Condition-Specific
Palliative Care
Surprise Billing
By State
CaringInfo
This program is part of the National Hospice and Palliative Care Organization. It provides free resources and other information to help people make decisions about hospice services.
Palliative Care
General
GetPalliativeCare.org
This website offers numerous resources for palliative care and a provider directory.
PalliativeDoctors.org
This is a website for patients from the American Academy of Hospice and Palliative Medicine. The site offers information about hospice and palliative care.
Palliative Care Resources
This page is from the National Institute of Nursing Research. It offers resources for understanding palliative care and for discussing palliative care with your healthcare provider.
PREPARE
PREPARE for Your Care is an online resource that helps people learn about and prepare for medical decision making. This evidenced-based tool features video stories in English and Spanish and guides users as they explore their wishes and learn how to discuss them with family, friends, and medical providers. The website also offers PREPARE written pamphlets as well as a Toolkit to help put on a PREPARE Group Movie Event. These Movie Events can be used in group medical visits or in the community. PREPARE also offers easy-to-read, legally-binding advance directives for all 50 states in English and Spanish. Check out PREPARE here: www.prepareforyourcare.org.
Pediatric
Pediatric Palliative Care
This is a section of the website GetPalliativeCare.org. It offers resources that help you understand what palliative care for pediatric patients includes and where to get such care.
Palliative Care: Conversations Matter
This page is from the National Institute of Nursing Research. It offers resources to help you understand palliative care and that answer common questions about palliative care.
Pediatric Palliative Care
This organization works to empower, support and equip families and providers caring for children with serious illness. It maintains a network of parents and pediatric care providers who share resources to help families make informed decisions about their child’s care.
Kidney Disease and Dialysis
National Kidney Foundation
This organization is dedicated to the awareness, prevention and treatment of kidney disease. Its website offers a great deal of information about kidney disease, dialysis and palliative care for kidney disease.
American Kidney Fund
This organization is committed to supporting and empowering individuals with kidney disease to by offering educational resources and financial assistance. Its website offers programs on kidney disease, dialysis and financial support for treatment.
Kidney Disease, Kidney Failure and Palliative Care
This page is from the website GetPalliativeCare.org. It offers information on the benefits of palliative care when dealing with kidney disease and/or kidney failure.
Ventilators
Ventilator/Ventilator Support
This page is from the National Heart, Lung, and Blood Institute. It offers additional information on what to expect while on a ventilator and when taken off a ventilator.
Mechanical Ventilation
This page is from the American Thoracic Society. It provides additional information on the operation and process of using a ventilator.
Caregiving
Eldercare.acl.gov
Join a caregiver support group, either in-person or online. That can give you a chance to ask questions, get advice and share experiences. One place to find such a group is your local Area Agency on Aging (AAA). Find your local AAA by searching on eldercare.acl.gov.
Family Caregiver Alliance
Caregiving provides nationwide support for those caring for loved ones with chronic, disabling health conditions. This site is part of the Caregiver Media Group, which is a leading provider of information, support and guidance for family and professional caregivers.
Read the FAIR Health Insurance Basics article, Help for Caregivers, for more information and resources.
Need Help? Call