General
Patients and Caregivers - NHPCO

CaringInfo

This program is part of the National Hospice and Palliative Care Organization. It provides free resources and other information to help people make decisions about hospice services.

Palliative Care | Serious Illness | Get Palliative Care

PalliativeDoctors.org

This is a website for patients from the American Academy of Hospice and Palliative Medicine. The site offers information about hospice and palliative care.

Palliative Care Resources | National Institute of Nursing Research

Palliative Care Resources

This page is from the National Institute of Nursing Research. It offers resources for understanding palliative care and for discussing palliative care with your healthcare provider.

PREPARE

PREPARE for Your Care is an online resource that helps people learn about and prepare for medical decision making. This evidenced-based tool features video stories in English and Spanish and guides users as they explore their wishes and learn how to discuss them with family, friends, and medical providers. The website also offers PREPARE written pamphlets as well as a Toolkit to help put on a PREPARE Group Movie Event. These Movie Events can be used in group medical visits or in the community. PREPARE also offers easy-to-read, legally-binding advance directives for all 50 states in English and Spanish. Check out PREPARE here: www.prepareforyourcare.org.

Pediatric
What Is Pediatric Palliative Care?

Pediatric Palliative Care

This is a section of the website GetPalliativeCare.org. It offers resources that help you understand what palliative care for pediatric patients includes and where to get such care.

Palliative Care: Conversations Matter® | National Institute of Nursing Research

Palliative Care: Conversations Matter

This page is from the National Institute of Nursing Research. It offers resources to help you understand palliative care and that answer common questions about palliative care.

Empowering parents caring for children with serious illness through video, shared community, professional guidance, and
                                        palliative care. You are Not Alone.

Pediatric Palliative Care

This organization works to empower, support and equip families and providers caring for children with serious illness. It maintains a network of parents and pediatric care providers who share resources to help families make informed decisions about their child’s care.

Kidney Disease and Dialysis
National Kidney Foundation - Heart Your Kidneys

National Kidney Foundation

This organization is dedicated to the awareness, prevention and treatment of kidney disease. Its website offers a great deal of information about kidney disease, dialysis and palliative care for kidney disease.

Fighting kidney disease and helping people live healthier lives - American Kidney Fund (AKF)

American Kidney Fund

This organization is committed to supporting and empowering individuals with kidney disease to by offering educational resources and financial assistance. Its website offers programs on kidney disease, dialysis and financial support for treatment.

Fighting kidney disease and helping people live healthier lives - American Kidney Fund (AKF)

Kidney Disease, Kidney Failure and Palliative Care

This page is from the website GetPalliativeCare.org. It offers information on the benefits of palliative care when dealing with kidney disease and/or kidney failure.

Ventilators
Ventilators are machines that support breathing.

Ventilator/Ventilator Support

This page is from the National Heart, Lung, and Blood Institute. It offers additional information on what to expect while on a ventilator and when taken off a ventilator.

Patient Education - Information Series - Mechanical Ventilation

Mechanical Ventilation

This page is from the American Thoracic Society. It provides additional information on the operation and process of using a ventilator.

Caregiving
A public service of the U.S. Administration on Aging

Eldercare.acl.gov

Join a caregiver support group, either in-person or online. That can give you a chance to ask questions, get advice and share experiences. One place to find such a group is your local Area Agency on Aging (AAA). Find your local AAA by searching on eldercare.gov.

Best practice caregiving - guiding organizations to dementia programs for family caregivers

Family Caregiver Alliance

Caregiving provides nationwide support for those caring for loved ones with chronic, disabling health conditions. This site is part of the Caregiver Media Group, which is a leading provider of information, support and guidance for family and professional caregivers.

Read the FAIR Health Insurance Basics article, Help for Caregivers, for more information and resources.